www quakerboy us

4y

· edited

some detail 3/6/20:

i was born with a blood vessel on my brain that was a ticking time bomb and when my blood pressure rises it fills (https://www.mayoclinic.org/diseases-conditions/brain-avm/symptoms-causes/syc-20350260)so i was deadlifting at the gym and it burst so now i’ve been in the hospital for 14 days

my left arm and leg are currently paralyzed

wish me luck or ama
they see the first one through my wrist 🤯🤯🤯🤯🤯🤯
this is how they do brain surg:
https://m.imgur.com/a/64KzE6V

i’m 24

update 2/23/21: a couple days past 1 year:

i have recovered extremely well and am currently working on gross motor functions of my hand, but everything else like upper arm and entire leg are in the fine tuning stage essentially.

after i unlock hand extension i will have a full functional left arm, albeit weak, but strengthening is the easy part

i am very close to being able to get back to my new 100% capability

the AVM is still not fully cured, but my last surgery could be soon. i have done 7 angiogram embolizations that have worked, but there is one last part that has a higher risk of re-stroke than all the other places.

#8 last surgery on 4/21 if everything goes to plan i will be done indefinitely

other updates along the way are just posted on the thread i prolly should’ve documented those in op

update 9/5/21:

physicality wise i am unfortunately in the same place as the last update, lacking a functional hand, hopefully still in the cards for me. lately i've been complimented on my fluidity walking. a few people also said they didn't even know i had any disabilities which is good

as far as my brain my monkey on my back last surgery has been postponed twice and is tentatively scheduled for 10/29/21, but i am low risk so other than just wanting to get it done it's not a huge deal

update 12/29/21:

so i'm trying to correct some of my mistakes in the OP, but I can't get everything right. i've been home all of december from my 8th brain angiogram. now what's left on the table for TBD in the new year is my FINAL brain surgery, which will be a gamma-knife (https://youtu.be/7ScVu-ZGfu8) and i can't wait

update 5/25/22

gamma knife was the worst looking, yet easiest surgery of my 9

super easy, now i’m DONE w brain surgery indefinitely until they check in a few years to see where the gamma took it and if it’s necessary i’ll only have more of these which is fine! the bad part is i had a cognitive stroke and got anterograde amnesia

DickerSpaniel

4y

what did it feel like when it popped

Sousa2626

4y

dam wtf man hope you get better man

plants

4y

dam thats crazy
u gonna regain the use of your left side after the surgery?

DickerSpaniel

4y

what did it feel like when it popped

Sousa2626

4y

dam wtf man hope you get better man

www quakerboy us

4y

· edited

some detail 3/6/20:

i was born with a blood vessel on my brain that was a ticking time bomb and when my blood pressure rises it fills (https://www.mayoclinic.org/diseases-conditions/brain-avm/symptoms-causes/syc-20350260)so i was deadlifting at the gym and it burst so now i’ve been in the hospital for 14 days

my left arm and leg are currently paralyzed

wish me luck or ama
they see the first one through my wrist 🤯🤯🤯🤯🤯🤯
this is how they do brain surg:
https://m.imgur.com/a/64KzE6V

i’m 24

update 2/23/21: a couple days past 1 year:

i have recovered extremely well and am currently working on gross motor functions of my hand, but everything else like upper arm and entire leg are in the fine tuning stage essentially.

after i unlock hand extension i will have a full functional left arm, albeit weak, but strengthening is the easy part

i am very close to being able to get back to my new 100% capability

the AVM is still not fully cured, but my last surgery could be soon. i have done 7 angiogram embolizations that have worked, but there is one last part that has a higher risk of re-stroke than all the other places.

#8 last surgery on 4/21 if everything goes to plan i will be done indefinitely

other updates along the way are just posted on the thread i prolly should’ve documented those in op

update 9/5/21:

physicality wise i am unfortunately in the same place as the last update, lacking a functional hand, hopefully still in the cards for me. lately i've been complimented on my fluidity walking. a few people also said they didn't even know i had any disabilities which is good

as far as my brain my monkey on my back last surgery has been postponed twice and is tentatively scheduled for 10/29/21, but i am low risk so other than just wanting to get it done it's not a huge deal

update 12/29/21:

so i'm trying to correct some of my mistakes in the OP, but I can't get everything right. i've been home all of december from my 8th brain angiogram. now what's left on the table for TBD in the new year is my FINAL brain surgery, which will be a gamma-knife (https://youtu.be/7ScVu-ZGfu8) and i can't wait

update 5/25/22

gamma knife was the worst looking, yet easiest surgery of my 9

super easy, now i’m DONE w brain surgery indefinitely until they check in a few years to see where the gamma took it and if it’s necessary i’ll only have more of these which is fine! the bad part is i had a cognitive stroke and got anterograde amnesia

www quakerboy us

4y

worst headache i’ve ever had

DickerSpaniel

4y

i mean i know it’s prolly too soon to tell but do you “feel” it being gone ?